Back in March when Kathy and I received our tour of Children's Mercy we met Sofia Rose Miller and her mother. Sofia had a CDH and was on ECMO at the time of our visit. Her mother was very kind and gave us the web address of the blog they started for their daughter. Kathy and I follow her blog closely and to be honest most of our knowledge about CDH either came directly from their blog or stemmed from one of their many links about CDH.
Sorry, I kind of got off topic. The point of this entry was to let everyone know that I was able to visit the entire family on the same day Kinley came to Children's Mercy. After visiting Kinley, Dr. H escorted me to Sofia's current baby station. Speaking of baby stations, Kinley is staying in the exact baby station Sofia was in when we came on our visit. Sofia is very close to going home now and we wish the entire family all the best. Thank you Miller family for allowing us to follow and experience your journey.
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