It's Kinley's Turn

It seems like all of our friends have already taken their children to Deanna Rose Farmstead, the local petting zoo. We have been meaning to take Kinley there ever since the weather started getting nice again. Well, today was the day. It just so happened that Aunt Mary was going to be at Deanna Rose with her first grade class for a field trip, so we figured this was the perfect day to go. It stormed early in the morning, but by 10:30 am it cleared up and was a beautiful day to get out and see some animals. Here are the pics of Kinley at the petting zoo. (She didn't really seem to interested in the animals, but she did enjoy getting out of the house.)

And yes, Kinley got tons of compliments on her sunglasses while we were out.

No More Feeding Pump

Kinley has not needed a tube feeding since December, but we kept the feeding pump and supplies around just in case, until now. I called Apria a couple of weeks ago to see if they could come pick up the pump, and they did a few days later. Then, this past Monday Kinley had her regularly scheduled visit with her OT from Infants and Toddlers of Johnson County and we donated the rest of her feeding pump supplies to them. Needless to say, Kinley's closet seems much larger now. It is so nice to have all that out of the way! We still have the apnea monitor for now, but just because I didn't want to deal with the respiratory department of Apria after I called the enteral department.

You would think this would be a cause for celebration around our house, but not so much. Apria needed to get authorization from the Special Care Clinic at Children's Mercy Hospital before they could take back the feeding pump. The Special Care Clinic gave the authorization, but then realized we had not been in for a visit since December. Kinley has been doing so well I didn't think it was necessary to bring her in for monthly visits during cold and flu season. After all, she still sees her pediatrician for regular check-ups. Lets just say that was not the opinion of the Special Care Clinic. I received a call from a nurse a couple of days ago and was told that we needed to schedule an appointment with them and the OT department if we still wanted to be considered patients of the clinic. I actually planned on scheduling an appointment around Kinley's 1st Birthday with the hopes that it might be her last, so I agreed. Then the nurse told me that Kinley's provider at the clinic would not be prescribing thickener for Kinley anymore, since we had not been seen for a while. I was told that if Kinley still needed thickener she would have to get her regular pediatrician to order it from Apria. Had I not just ordered thickener I would have been even more upset about this.

While I am very happy that the feeding pump is behind us, sometimes I think I should have just left well enough alone.