Kathy and I arrived at Children's Mercy around 11:30 am, but we had to go by admissions before we could head up to see Kinley. It did not take long, just a few forms and getting a copy of our insurance card.
When we arrived at Kinley's baby station we found that Dorothy, or Dot, was taking care of Kinley today. She gave us an update of last night's events. They increased Kinley's vent settings because her O2 levels dropped down into the 50s. They gave her some extra saline to help increase her BP. They also gave her some extra morphine and versed to try and calm her down. They thought that her stats might have dropped because she was agitated. Finally, they took an x-ray around 5 am and everything came back looking good.
At 3:00 pm Kinley became 4 days old. This is very special to us because today is our 4th wedding anniversary.
Around 4:20 pm the Neonatal Nurse Practitioner (NNP) came by and ordered a blood transfusion to help increase BP and increase oxygenation. She also informed us that the surgery team is still following Kinley's case, but feel that she is not stable enough for surgery yet. Right after, Kathy got to change her first diaper! (She was really excited about it.)
At 6:30 pm we received the results of Kinley's most recent blood gas test. Her Ph was 7.35, CO2 was 54 and O2 was 81. Also her urine output is at 5 cc/kilo/hr. Like we said before, Kinley is a urine making machine. Way to go baby girl!
At 8:45 pm Kinley's night nurse, Noel, gave Kinley some extra morphine and versed to try and settle her down and get her O2 levels up. Overall we felt that Kinley was doing pretty good so we decide to head home and try to get caught up on some much needed rest.
No rest for us tonight. Kathy received a call at 10:30 pm from Dr. H who was calling to let us know that Kinley's O2 levels had dropped into the 40s and that they would do another blood gas test at 11:30pm. If her stats did not increase by then they would likely have to put Kinley on ECMO. Kathy and I decide not to wait for the results of her next blood gas test and head back to Children's Mercy. We were a little over half way there when Dr. H called back to tell us that Kinley's numbers were getting worse, her O2 levels had dropped into the 30s, and that they were getting everything prepared for ECMO surgery. We arrived at Kinley's bedside around 11:45 pm and sign the ECMO consent form. They are going to have to do the surgery right there at her baby station because the baby operating room already has a baby in it. We both give Kinley a kiss before surgery begins. We are not allowed to stay for the surgery so they show us to the Parent Care Unit (PCU) room they reserved for us to stay in tonight. Surgery should take about one hour. We end up sitting in silence until around 12:30 am when we both go to the lactation room so Kathy can pump.
Continued on "Friday, May 30th."
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