Katie is back today to take care of Kinley. She lets us know that Kinley ate 30 ccs at her 5:00 am feeding. Kinley had been getting a bit gaggy and her night nurse didn't want her throw up and lose any of her feeding. So she added the remaining portion of her bottle to her NG feed. At her 8:00 am feeding, Kinley took her entire 55 cc bottle for Katie.
For a while now, Children's Mercy has been trying to give Kinley a hearing test, but it only works if Kinley is asleep for the entire test. So far they have not been lucky enough to catch Kinley sleep. She is asleep this morning so they decide to attempt the test. It is amazing that any baby can stay asleep for the hearing test. They have to attach 3 sensors to the baby's head and place a hearing device over each ear. We are able to get everything attached and start the test, but Kinley wakes up early into the test and they will have to try again at a later time. We are not worried that there is anything wrong with Kinley's hearing because she kept waking up each time they started and re-started the test.
There is a big change during rounds today. Kinley will be allowed to eat as much as she can by bottle and then receive the rest through her NG tube. It is hard to say how Kinley will do since sometimes she falls asleep during her bottle and other times she is awake for a good while after her 55 cc bottle feeds.
Kinley took 60 ccs at her 11:00 am feeding, but we had to work hard to keep her awake and eating. During the NG portion of her feed Kinley receives her vitamin with iron and nystatin. Nystatin is for her thrush and it is given orally to make sure that it coats her mouth.
Kinley's new feeding plan, to a certain degree, allows her to tell us when she wants to eat. We cannot let her get too far off her feeding schedule, but we can give her a little more time to tell us that she is hungry. Her normal feeding schedule is to eat at 2:00 pm, but she is asleep. Therefore she must not be hungry, so we let her sleep. She wakes up around 2:30 pm. Katie has to give Kinley her bottle feeding because Kathy and I have to meet with the discharge planner to go over putting in an NG tube. Today we practice on a doll, but soon we will have to do the real thing on Kinley. If Kinley comes home with her NG tube both Kathy and I will need to know how to put it in in case she pulls it out or throws it up.
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2 comments:
Hey Kinley, I hope you stay asleep for that hearing test sometime soon but if not you know who to come see when you get home! Keep up the good work!
I ca't imagine how nervous you are about placing the NG tube in Kinley. I hope that Kinley stay asleep for her hearing test.
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