Saturday, July 5th - Family time

Since Kevin and I stayed a little late last night (I didn't want to leave Kinley since I was holding her and she looked so peaceful) we slept in a little and didn't make it back to Children's Mercy until about 12:30 pm. When we arrived Kinley was fast asleep in her bed. Liz, Kinley's nurse for today, said that she had her IPPB treatment a little while ago and really did not like it. She was probably worn out from fighting with the respiratory therapist. Kevin and I have been so worried about Kinley's health that we forgot to teach her manners. Note to Kinley...it is not nice to fight with people who are trying to do their jobs and make you better faster. The good news is that her IPPB breathing treatments have been moved to every 12 hours instead of every 6 hours, so at least that will be nicer for Kinley.

Liz lets us know that today is a day for Kinley to rest and for us to spend some time together as a family. There are no changes to her plan of care and they are even giving Kinley a rest from weaning her versed.

Since I (Kathy still) have been hording Kinley's holding time I am letting Kevin spend time with Kinley today. He has been holding her since we arrived and Liz even let Kevin continue to hold Kinley during her assessments of Kinley. I don't think Kinley would have it any other way. She looks so comfortable in her daddy's arms and has even had some more practice with her binkie. On a side note, we forgot to mention that Kinley still has an OG tube. Her OG tube goes into her mouth and down to her stomach. It is used to suck out the contents of her stomach until she is ready to begin feeding. The nurses have been getting quite a bit of secretions out of this tube. Hopefully the amout of secretions will start to deminish so that the tube can be taken out and Kinley can begin eating. Because the OG tube is still in Kinley's mouth her binkie has to be cut to fit around the tube.

Big news for today is that Kinley is breathing "room" oxygen. Her nasal cannula has been delivering 21% oxygen for most of today and she has been able to keep her blood oxygen saturation in the mid to high 90s.