Please pray for Sofie. She is back at Children's Mercy tonight after reherniating her diaphragm repair patch. She is back on a ventilator and they will be doing her repair surgery tonight.
Sofie and her parents, Jennifer and Kenny, mean so much to us. They have been our guides through this crazy and unimaginable world of CDH. Kathy and I met Sofie and her mother back in March when we received our tour of Children's Mercy. Jennifer was kind enough to let us stop by Sofie's bedside. She gave us their blog information (www.babymiller08.blogspot.com) and we have been Sofie fanatics ever since. Reading Sofie's blog prepared us the most for what we were about to go through with Kinley and we are grateful every day for her and her parents.
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Thanks for the prayers guys-it means so much to us!! We will definitely be those parents at the park who don't notice when their kid falls down and skins a knee. Shoot that's nothing compared to ECMO. Our girls are tough - they both did a stint in rehab at one month of age!
Jen Miller
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