Dr. W came by to talk with Kathy and I about the most recent set of plans for getting Kinley off of ECMO and into surgery to repair her diaphragm. The plan is as follows. . .
Today, at 6:30 pm, Kinley will get a chest x-ray to see how her right lung is looking. (FYI - Kinley's chest x-ray from this morning showed that the upper lobe of her right lung was a tiny bit more open than yesterday.) The 6:30 pm chest x-ray will also be used to compare to tomorrow morning's chest x-ray. At 7:00 pm today, the oxygen on Kinley's ECMO machine will be capped. This means that Kinley will be responsible for all of her gas exchange, both O2 and CO2. As long as Kinley is tolerating it well, they will leave the ECMO oxygen capped for 12 hours.
Tomorrow, after 12 hours of doing all of her own gas exchange, Kinley will have another chest x-ray and a heart echo test done. Based on the results of both of these the doctors will make a decision whether or not to take Kinley off of ECMO. If they decide that she is ready to come off of ECMO, the surgeons will be called in to remove the ECMO tubes from Kinley's neck. Once the tubes are removed, Kinley will be put on the schedule for diaphragm repair surgery. The surgeons prefer to wait 24 hours from tube removal to beginning the diaphragm repair surgery. This is to make sure that the baby is stable before surgery. Our hope is to have the ECMO tubes removed from her neck early tomorrow so they can do her diaphragm repair surgery on Friday. If you can remember from last time, the surgeons do not do surgery on the weekend so if they cannot get her in on Friday then she will have to wait until Monday.
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Baby girl, you are such the little fighter!! You are constantly in our thoughts and we know that you are in such good hands both with the doctors and nurses at CM, but also with your brave parents! We're taking good care of Kobi so she'll be ready to give you lots of kisses when you come home!
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