After an uneventful weekend Kathy and I were looking forward to seeing Dr. M again and hearing her thoughts on Kinley's status and future treatment plans. Overall, we were expecting another uneventful day of getting Kinley ready to come off of ECMO.
We arrived a little after 9:30 am and immediately know that today would not be uneventful. As we walked in Kinley's room we could see that her O2 saturation was the lowest that we had ever seen it. Dot gave us a quick update. A chest x-ray that was taken a little after 7:00 am showed that Kinley's entire right lung had collapsed because her breathing tube was out of place. Dr. M and Dr. W had already changed out Kinley's breathing tube. Changing breathing tubes can be dangerous with babies on ECMO because if a bleed is caused while placing the new tube it may not clot due to the heparin (blood thinner) that ECMO babies must be on. Dr. M has also made some adjustments to Kinley's ventilator to help re-open the lung. Another chest x-ray is scheduled for 2:00 pm. Another thing that happened, due to the breathing tube being out of place, was that the bowels in Kinley's chest have filled with air. This places more pressure on her heart and right lung. To try and remove the air in her bowels they will paralyze Kinley. This will stop anymore air from entering her bowels and will allow the nurses to try and suction the extra air out through Kinley's OG tube (a tube that goes from Kinley's mouth to her stomach). Hopefully with a new breathing tube, new ventilator setting, being paralyzed and suctioning the air from her bowels will allow her right lung to re-open.
Around 11:00 am Dr. W came by with an update on Kinley's treatment. We will continue her IPV treatments to try and get the mucus out of her lungs, but we will skip the next treatment due to everything that happened this morning. The doctors are also planning on moving forward with Kinley's diaphragm repair surgery. It is currently scheduled for Wednesday afternoon. We plan to sit down and talk with Dr. M and Dr. W later today and discuss the risks and benefits of moving forward with surgery at this time.
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2 comments:
Kinley is in our thoughts and prayers. I am Wyatt's mom and my son was in your daughter's similiar situation- on ECMO with CDH. CDH kids are tough little fighters. I check her blog everyday and we are thinking about her.
Gina
Wyatt's Blog- http://wyattjameskoger.blogspot.com/
Continuing thoughts and prayers coming your way. Cadenne (her blog link is on my page) had her repair surgery done on ECMO. You might want to contact her mom for any info on their experience (if you have not already). Kinley is my new obsession so I will be checking in regularly.
Amy
Liviana's mom
livianasjourney.blogspot.com
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