Kinley has not needed a tube feeding since December, but we kept the feeding pump and supplies around just in case, until now. I called Apria a couple of weeks ago to see if they could come pick up the pump, and they did a few days later. Then, this past Monday Kinley had her regularly scheduled visit with her OT from Infants and Toddlers of Johnson County and we donated the rest of her feeding pump supplies to them. Needless to say, Kinley's closet seems much larger now. It is so nice to have all that out of the way! We still have the apnea monitor for now, but just because I didn't want to deal with the respiratory department of Apria after I called the enteral department.
You would think this would be a cause for celebration around our house, but not so much. Apria needed to get authorization from the Special Care Clinic at Children's Mercy Hospital before they could take back the feeding pump. The Special Care Clinic gave the authorization, but then realized we had not been in for a visit since December. Kinley has been doing so well I didn't think it was necessary to bring her in for monthly visits during cold and flu season. After all, she still sees her pediatrician for regular check-ups. Lets just say that was not the opinion of the Special Care Clinic. I received a call from a nurse a couple of days ago and was told that we needed to schedule an appointment with them and the OT department if we still wanted to be considered patients of the clinic. I actually planned on scheduling an appointment around Kinley's 1st Birthday with the hopes that it might be her last, so I agreed. Then the nurse told me that Kinley's provider at the clinic would not be prescribing thickener for Kinley anymore, since we had not been seen for a while. I was told that if Kinley still needed thickener she would have to get her regular pediatrician to order it from Apria. Had I not just ordered thickener I would have been even more upset about this.
While I am very happy that the feeding pump is behind us, sometimes I think I should have just left well enough alone.
You would think this would be a cause for celebration around our house, but not so much. Apria needed to get authorization from the Special Care Clinic at Children's Mercy Hospital before they could take back the feeding pump. The Special Care Clinic gave the authorization, but then realized we had not been in for a visit since December. Kinley has been doing so well I didn't think it was necessary to bring her in for monthly visits during cold and flu season. After all, she still sees her pediatrician for regular check-ups. Lets just say that was not the opinion of the Special Care Clinic. I received a call from a nurse a couple of days ago and was told that we needed to schedule an appointment with them and the OT department if we still wanted to be considered patients of the clinic. I actually planned on scheduling an appointment around Kinley's 1st Birthday with the hopes that it might be her last, so I agreed. Then the nurse told me that Kinley's provider at the clinic would not be prescribing thickener for Kinley anymore, since we had not been seen for a while. I was told that if Kinley still needed thickener she would have to get her regular pediatrician to order it from Apria. Had I not just ordered thickener I would have been even more upset about this.
While I am very happy that the feeding pump is behind us, sometimes I think I should have just left well enough alone.
3 comments:
I am sorry about what they are doing to you. I find it frustrating with our HMO telling us to do one thing and then UCSF to do another. I am glad that the feeding pump is no longer needed. Way to go Kinley. She is so adorable!
All the logistics are so annoying sometimes. But I'm glad she's doing better. Did you have problems with insurance covering the post ECMO visits at the special clinic? Just curious. We're not sure we're going to schedule Jack's one year if it's not covered since it was really stuff we could have just told them anyway.
Yeah, they can be annoying, but hey! the great news is that Kinley is not needing the pump anymore! WTG Kinley!
Post a Comment