First Diagnosis

On January 18th, 2008, we had our first appt with the perinatologists at St. Luke's on The Plaza. After our Level 2 Sonogram we met with Dr. L who explained the possible reasons for Kinley's heart issue. Since Kathy was only 20 weeks pregnant it was very difficult to make a concrete diagnosis. Dr. L's best guess of Kinley's problem was a Congenital Cystic Adenomatoid Malformation (CCAM). Basically, this is a cyst or tumor growing in the chest cavity and it is pushing the heart out of place. The biggest concern with a CCAM is the develpment of the lungs. With the heart being pushed to the right side of the chest, it will inhibit the growth of the right lung and with the cyst/tumor on the left side of the chest, it will inhibit the growth of left lung. The one bit of good news we received was that even though her heart was out of place, there were no defects with the heart itself.